OMOP in Sweden
From the first early adopters in 2018 to a government assignment in 2026, Swedish organisations are building a shared foundation for health data research with the OMOP Common Data Model.
- First Swedish organisations start exploring OMOP
- 2018
- First Swedish data partner in EMA's DARWIN EU
- 2025
- Government assignment to investigate OMOP for national health registries
- 2026
The journey so far
A short history of how OMOP has taken root in Sweden.
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2018
The first early adopters
AstraZeneca and WHO's Uppsala Monitoring Center begin exploring OMOP and join the consortium behind EHDEN, an Innovative Medicines Initiative project supported by the EU's Horizon 2020 programme and EFPIA.
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The years that followed
Swedish data partners
Several organisations become data partners with EHDEN Foundation and/or EMA's DARWIN EU, including:
- Karolinska Institutet – Department of Medical Epidemiology and Biostatistics (MEB)
- Linköping University – Department of Biomedical and Clinical Sciences (BKV), which mapped the Swedish Inflammatory Bowel Disease Registry (SWIBREG) to OMOP
- University of Gothenburg – the SCIFI-PEARL research project
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April 2025
First Swedish partner in DARWIN EU
SCIFI-PEARL becomes the first Swedish data partner in EMA's DARWIN EU network.
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March 2026
Government assignment
The Government tasks the National Board of Health and Welfare with investigating the prerequisites, costs and benefits of making Swedish health registries available according to the OMOP CDM.
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Today
A growing community
More organisations are exploring the potential of OMOP and the methods and tools from the open-science network OHDSI.
OMOP users in Sweden
Organisations and initiatives in Sweden working with the OMOP Common Data Model.
The Government Offices
Assignment to investigate OMOP adaptation of Swedish health registries
Government assignment to investigate and describe prerequisites, costs, and benefits of making Swedish health registries available according to OMOP CDM to facilitate international collaboration and research.
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Karolinska Institutet - MEB
Implemented OMOP for studies on older adults and healthcare use
Mapped Swedish registry data to OMOP CDM via EHDEN and became a data partner to EHDEN Foundation. Also used OMOP CDM in Stockholm CREAtinine Measurements to quantify medication errors and CKD burden.
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University of Gothenburg, SCIFI-PEARL
Largest and most active Swedish OMOP implementation
National linked observational study with regular updates. Data partner to EHDEN Foundation and, since April 2025, to EMA's DARWIN-EU.
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SWIBREG
National quality registry for inflammatory bowel disease
Mapped to OMOP through EHDEN and data partner to EHDEN Foundation.
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Uppsala Monitoring Center
Early OMOP adopter for pharmacovigilance signal management
Leader in using Real-World Evidence and federated OMOP-harmonized datasets in pharmacovigilance studies.
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Lund University, Intelligent Systems Laboratory
AI-based decision support for colon cancer care
Contributes to FLORENCE with expertise in trustworthy and robust AI and privacy-preserving federated learning on OMOP data.
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The Swedish Medical Products Agency
Swedish DARWIN EU node since February 2025
DARWIN EU is established by EMA and the European Medicines Regulatory Network to provide timely and reliable evidence on medicine use, safety, and effectiveness from EU healthcare databases.
Visit websiteIs your organisation working with OMOP?
Get in touch if you would like to be featured here or join the OMOP 4 Sweden initiative.